NORC is supporting the Global Parkinson’s Genetics Program (GP2) study. 

NORC is supporting recruitment for the Global Parkinson’s Genetics Program (GP2)  study, funded by the Aligning Science Across Parkinson’s initiative and implemented by The Michael J. Fox Foundation for Parkinson’s Research. NORC supports the US-based study teams to recruit Black and African American (BAA) adults with and without Parkinson’s disease across the United States to transform the understanding of Parkinson’s genetics.

NORC supports this work by providing cross-site training/technical assistance (TTA) and facilitating co-learning forums to support recruitment efforts and promote community-engaged research across eleven study sites. As part of this work, NORC has also created a roadmap of best practices intended to mutually and iteratively document best practices for recruitment of BAA adults into the GP2 study. The roadmap synthesizes and shares a collection of best recruitment and engagement practices from the literature, subject matter experts, and community experience, to produce a living document that can evolve during the course of the study. 

• Global Parkinson’s Genetics Program (GP2): The Global Parkinson’s Genetics Program (GP2) is a large, 10-year genetics study partnering with cohorts around the world to collect and genotype samples from over 200,000 volunteers—both individuals with Parkinson’s diseases and controls—to further understand the genetic architecture of Parkinson’s disease. The program funds and coordinates contributions across over 200 unique member cohorts covering six continents. 

• Learnings from this work have the potential to inform therapeutic development and care practices benefitting all Parkinson’s populations.

GP2 is funded by the Aligning Science Across Parkinson’s (ASAP) initiative and implemented by The Michael J. Fox Foundation for Parkinson’s Research. See a complete list of GP2 members.